In January 2015, a group of us – Tanya Collin-Histed, Niamh Finnegan (LSD Clinical Nurse Specialist, GOSH) Alex Broomfield, consultant metabolic paediatrician, and Irma Shah, a young type III Gaucher adult, and myself visited Chennai and Delhi.
Our first stop was Chennai, where we were guests of Dr Sujatha Jagadeesh, the clinical geneticist at Mediscan, whom I have known and worked with for nearly 15 years! Sujatha runs the LSD service at the centre. She has built up a closely-knit team, many of whom have been associated with the service since its inception. The centre hold a multidisciplinary clinic every year on the 26th of January, India’s Republic Day. This enables more families to attend as it is a national holiday. The clinic is also attended by several specialists, ensuring that patients can be seen by all the necessary specialists at a single visit.
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the Department of Medical Genetics the All India Institute of Medical Sciences, New Delhi, where we were guests of Dr Madhulika Kabra and Dr Neerja Gupta. They had organised a clinic and some lectures. A patient meeting was also organised in conjunction with the Lysosomal Storage Disorders Support Society (LSDSS) of India and its CEO, Mr Manjit Singh.
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