I visited Kiev, the Ukraine capital, in November 2015. I was a guest of Dr Natalia Pichkur at the Centre of Orphan Diseases, National Children Specialized Hospital OKHMATDYT. I participated in a clinic and also gave a lecture.
In January 2016 I visited two centres in India. With me were Tanya Collin-Histed, Helen Whitehead from the UK Gauchers Association, Elin Davies, a dear friend and colleague with whom I have worked for over 15 years, and founder and CEO of Aparito, a wearable technology company, and two young type III Gaucher adults, Sara Khan and Radhika Dhayatker.
We first went to Bengaluru, where we were guests of Dr Meenakshi Bhat, a clinical geneticist at the Centre for Human Genetics. Meenakshi has worked with LSD families for many years. I had visited the centre several times in the past.
We participated in clinics and a CME event, at which Radhika and Sara both spoke. We also had an opportunity to meet Kiran Majumdar-Shaw, CEO of Biocon, the largest biopharmaceutical compnay in India.
Some pictures from the visit below
We then traveled to Chennai, where we were guests of Dr Sujatha Jagadeesh, clinical geneticist at Mediscan at the Republic Day MDT clinic that I have referred to earlier.
Elin has developed wearable technology which her company is testing out in Gaucher disease patients. Manjit Singh, President of LSDSS, had kindly arranged for some type I patients to attend on the day of the clinic so that Elin could demonstrate the wearable and patients could begin testing it.
This was my second visit to the Lahore Children’s Hospital, Pakistan; the earlier one was in October 2015. On this occasion I was accompanied by my dear friend and colleague Tanya Collin-Histed, Chief Executive of the UK Gauchers Association. We were guests of Professor Cheema in the Department of Paediatric Gastroenterology.
I visited SGPGI (Sanjay Gandhi Postgraduate Institute of Medical Sciences) Lucknow from 14-16 February, where I was a guest of Professor Shubha Phadke in the Department of Medical Genetics. The department developed the first DM program in Medical Genetics in India. Its alumni are now heading departments all over the country. There is also a highly developed laboratory. For more information please see their website links as above.
The SGPGI has a beautiful campus, very quiet, with excellent security. Accommodation is provided to the residents on the campus. Altogether the atmosphere is very stimuating and conducive to study.
During my stay I did a clinic, where cases were presented by the postgraduate students, and gave a few lectures. Some pictures from the visit are attached.
From Delhi, Tanya and I flew to Chennai to attend the multidisciplinary clinic organised by Mediscan. As mentioned in an earlier post, this clinic is normally held on January 26th, India’s Republic Day. However, this year the team were busy organising ISIEM 2017 and so the clinic was moved.